Table 3 Autonomous preference index entries doubt and revision plan
Original entry | Revised instructions and solutions | Revised entry |
|---|---|---|
5. If you get sick, you want your doctor to have more decision-making authority as your condition worsens. | In response to the understanding that “doctors can get more decision-making management power”, seven respondents said that “doctors get more decision-making management power” means that personal rights are entrusted to doctors. After analyzing the results of interviews, group discussions, and expert consultation, the project team decided to incorporate the opinions. After the amendment changed it to “make more medical decisions for you”. | If you get sick, you want your doctor to make more medical decisions for you as your condition worsens. |
12. If you have cancer-related fatigue, who decides whether you should receive symptomatic treatment? | In response to the understanding of “cancer-related fatigue”, eight respondents said: “cancer-related fatigue is not fatigue”, and some respondents proposed that the vocabulary was too professional and difficult to understand. After group discussion, this opinion was incorporated, and a supplementary explanation of cancer-related fatigue was added after the article’s content. | If you have cancer-related fatigue (sleep disturbances, low mood, memory loss, etc.), who decides whether you should receive symptomatic treatment? |
13. Who decides whether or not you take first aid? | As for “first aid measures”, five respondents said that in addition to first aid measures, some life support treatment was included in the terminal stage. Three respondents asked, what are the first aid measures? After group discussion, the opinions were incorporated, and the contents of the articles and supplementary explanations were added. | Who decides whether you should take first aid measures or life support treatment? (e.g. tracheal intubation, cardiopulmonary resuscitation, hemodialysis, etc.) |
15. Who develops and determines your advance medical directive? | Regarding “advance medical Directives”, eight respondents said they had heard of advance medical directives. An advance medical directive is a pre-set medical care plan that has been used for a long time in foreign countries for advanced cancer. This research is in the initial stage in China, and the public awareness rate needs to be higher. After the group discussion, it was decided that the advanced medical Directive will be revised and supplemented due to the relatively mature research progress on living wills and advanced medical care plans in China. | Who makes your default medical care plan? (Living Will, advance medical Directive, advance medical care plan, etc.) |
17. You should be fully aware of the effects of your illness on the inside of your body. | For “inside the body,” four respondents said the cancer was more than physical. After a group discussion, the opinion was incorporated, and the word “inside the body” was replaced with “mind and body”. | You should be fully aware of the impact your illness has on your body and mind. |